• English

    Google Translate Disclaimer

    The Maryland Department of Information Technology (“DoIT”) offers translations of the content through Google Translate. Because Google Translate is an external website, DoIT does not control the quality or accuracy of translated content. All DoIT content is filtered through Google Translate which may result in unexpected and unpredictable degradation of portions of text, images and the general appearance on translated pages. Google Translate may maintain unique privacy and use policies. These policies are not controlled by DoIT and are not associated with DoIT’s privacy and use policies. After selecting a translation option, users will be notified that they are leaving DoIT’s website. Users should consult the original English content on DoIT’s website if there are any questions about the translated content.

    DoIT uses Google Translate to provide language translations of its content. Google Translate is a free, automated service that relies on data and technology to provide its translations. The Google Translate feature is provided for informational purposes only. Translations cannot be guaranteed as exact or without the inclusion of incorrect or inappropriate language. Google Translate is a third-party service and site users will be leaving DoIT to utilize translated content. As such, DoIT does not guarantee and does not accept responsibility for, the accuracy, reliability, or performance of this service nor the limitations provided by this service, such as the inability to translate specific files like PDFs and graphics (e.g. .jpgs, .gifs, etc.).

    DoIT provides Google Translate as an online tool for its users, but DoIT does not directly endorse the website or imply that it is the only solution available to users. All site visitors may choose to use alternate tools for their translation needs. Any individuals or parties that use DoIT content in translated form, whether by Google Translate or by any other translation services, do so at their own risk. DoIT is not liable for any loss or damages arising out of, or issues related to, the use of or reliance on translated content. DoIT assumes no liability for any site visitor’s activities in connection with use of the Google Translate functionality or content.

    The Google Translate service is a means by which DoIT offers translations of content and is meant solely for the convenience of non-English speaking users of the website. The translated content is provided directly and dynamically by Google; DoIT has no direct control over the translated content as it appears using this tool. Therefore, in all contexts, the English content, as directly provided by DoIT is to be held authoritative.

    Sickle Cell Disease Follow-​U​p Program

    What is Sickle Cell Disease (SCD)?

    Sickle cell disease (SCD) is a common disorder of the red blood cells, or hemoglobin. The name comes from the shape of the red blood cells, which become shaped like a C or a sickle.

    • These cells are sticky and rigid, rather than round, soft and smooth, and cannot move easily through the body.
    • Because of their odd shape, they may not be flexible enough to squeeze through small blood vessels and can deprive body parts of oxygen and can cause pain and damage tissues.
    • SCD is a disease that is inherited, this means that it is passed from parents to children. A child must receive a sickle cell trait gene from both parents to have SCD.
    SCD is serious and can cause complications. Regular primary care and specialty care visits are essential to improving quality of life

    What is Sickle Cell Trait (SCT)?

    Sickle cell trait (SCT) is a type of hemoglobinopathy or an inherited blood disorder. It affects between 1 and 3 million Americans, according to the American Society of Hematology.

    A person with SCT has inherited only one copy of the sickle cell gene from a parent. A person with sickle cell disease (SCD) has two copies of the gene, one from each parent.

    SCT can never turn into SCD. Because a person with SCT has only one copy of the gene, they will never develop SCD. Instead, they are considered a carrier for the disease. That means they can pass the gene for the disease on to their children. A simple blood test from your doctor can determine if you are a carrier and at risk of passing along SCT.

    Those who are at increased risk of having SCT include people of:

    • African,
    • Hispanic,
    • South Asian,
    • Southern European, or
    • Middle Eastern descent.

    How is SCT Inherited?

    • If both parents have SCT, there is a 50% (or 1 in 2) chance that any child of theirs also will have SCT, if the child inherits the sickle cell gene from one of the parents. Such children will not have symptoms of SCD, but they will have SCT and can pass SCT on to their children.
    • If both parents have SCT, there is a 25% (or 1 in 4) chance that any child of theirs will have SCD. There is the same 25% (or 1 in 4) chance that the child will not have SCD or SCT.


    How can SCT impact a person's health?

    Although rare, people with SCT can develop symptoms of SCD,  such as pain crises, under extreme conditions. These conditions include:
    • Increased pressure in the atmosphere, such as with scuba diving,
    • Low oxygen levels, which can occur while performing strenuous physical activity,
    • High altitudes,
    • Dehydration,
      • Athletes with SCT need to take precautions when performing. Staying hydrated is extremely important.
    Some conditions linked to SCT, include:
    • Reduced blood supply to the spleen,
    • Muscle breakdown (rhabdomyolysis),
    • Kidney damage and chronic kidney disease,
    • Bleeding (hyphema) and increased pressure in the eye (glaucoma) following eye injuries, and
    • Blood in the urine (hematuria).

    What are other kinds of hemoglobinopathy traits? 

    Hemoglobinopathies are a group of disorders passed down through families in which there is abnormal production or structure of the hemoglobin molecule. The most commonly known hemoglobinopathy is SCD. Besides SCT, there are two kinds of thalassemia trait: alpha thalassemia trait and beta thalassemia trait. Like SCT, people with alpha or beta thalassemia traits have inherited one copy of the thalassemia gene and do not have a disease, and the trait cannot become disease. Both types of thalassemia trait can cause the size of the red blood cells to be smaller than normal, which looks like iron deficiency anemia, but it does not require treatment. 

    What do I need to know about SCT and sports?

    People with SCT can safely participate in all sports provided they take a few general precautions, such as:
    • Drinking enough water,
    • Taking breaks when needed, and
    • Not overdoing it, especially when starting a new exercise program.​
    The conditions that increase the risk of exercise-related illness for athletes with SCT appear to be the same as those that increase the risk for athletes who do not have SCT and include:
    • Significant and sudden increase in exercise intensity,
    • Failure to adjust gradually to new environmental conditions like higher altitude, increased heat, or higher humidity,
    • Exercising when ill or dehydrated (lack of fluids), and
    • Drug, alcohol, or stimulant use.​

    What does the Maryland Department of Health's Sickle Cell Disease Follow-Up Program do? 

    ​The program follows newborns, children, and young adults with SCD up to age 18, providing them and their families information about sickle cell disease (SCD) and other hemoglobin disorders, what to expect from your doctor and specialist, guides to living with SCD, and other information pertaining to daycare, school, sports, transitioning to an adult doctor, web resources and organizations of interest to persons with SCD. 

    • Parent Mentor Program- This program pairs parents of a child newly diagnosed with SCD with another parent or person with SCD. The goal is for mentors to share support, advice, and suggestions for navigating resources. Click here to sign up as a mentor or mentee. 
    • Self-Referral- The SCD Follow-Up Program provides support and resources to babies born with SCD in Maryland. However, families with children with SCD, who were born in other states are welcome to enroll. Please complete this form and Program Staff will contact you. Click here to complete the self-referral form.