State Advisory Council on Hereditary and Congenital Disorders

The State Advisory Council on Hereditary and Congenital Disorders advises the Maryland Department of Health on finding and caring for conditions present at birth and/or passed down from parent to child.

This Council was created by Maryland law  (Maryland Code, Health-General §§ 13-101 to 13-111).

Members of the Council are chosen by the Secretary of Health. These members include health care providers, lawmakers, and community members.

Maryland screens for over 50 different conditions. Among other things, the Council discusses adding new conditions to the list of screening tests completed after birth in Maryland.

When considering adding a new condition to Maryland's newborn screening panel, the Council reviews:

  • how often each condition occurs

  • how helpful the treatment is

  • the cost of treatment

  • the beliefs of the community

  • the beliefs of individuals with the condition

  • information given by experts

     

Upcoming Meeting

Meeting Date: Tuesday, December 10, 2024

  5:3​​0 – 7:00 pm

Age​nda​​

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​Hereditary and Congenital Disorders Advisory Council Minutes ​ ​ ​

 
​04/02/2024
2023 Minutes 2018 Minutes
  02/21/2024
2022 Minutes2017 Minutes
 02/13/2024
2021 Minutes2016 Minutes

01/31/2024 2020 Minutes2015 Minutes
06/11/2024 
01/09/20242019 Minutes