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Sickle Cell Disease Resources and Links

 

Services and Benefits
 
Disability Benefits/Social Services Resources

Health Insurance
 

Community and Resource Organizations
 
Sickle Cell Disease Association of America
www.sicklecelldisease.org

National Coordinating Center and Evaluation Center for Sickle Cell Disease Newborn Screening Program
www.sicklecelldisease.net

Sickle Cell Association of the National Capital Area
www.scancainc.org

Sickle Cell Information Center
www.scinfo.org

American Sickle Cell Anemia Association
www.ascaa.org

Maryland Sickle Cell Disease Association
www.marylandsicklecelldisease.org

National Institutes of Health
www.NIH.gov

Centers for Disease Control and Prevention
www.CDC.gov

American Society of Hematology
www.hematology.org

March of Dimes
www.marchofdimes.com

Foundation for Women and Girls with Blood Disorders  
www.fwgbd.org

National Collegiate Athletic Association 
www.ncaa.org


Child/Teen Oriented Resources



Student Services

Maryland Infants and Toddlers Program​​​​
https://marylandpublicschools.org/programs/Pages/Special-Education/MITP/index.aspx​​
 
Student Support Services- primary/ secondary schools 
https://marylandpublicschools.org/about/Pages/DSFSS/SSSP/index.aspx​​
 
Student Support Services – College/University
* The following is a partial list of local colleges’ and universities.  Please check with your individual schools for support services available to students with disabilities and special circumstances.

Community College of Baltimore County
http://ccbcmd.edu/supportservices/index.html

Baltimore City Community College
http://www.bccc.edu/studentservices
 
 
Medical Resources and Hematology Centers
 
Clinical Trials (Sickle Cell research)
www.clinicaltraials.gov

Sinai Hospital
(410) 601-5864
www.lifebridgehealth.org/sinai

University of MD
(410) 328-2808
www.umm.edu

Georgetown University
(202) 444-7599
www.georgetownuniversityhospital.org
 
Children’s National Medical Center
(202) 476-2800
Hematology (202) 476-7060
www.childrensnational.org
 
Howard University
(202) 865-4583
www.Huhealthcare.com
 
Johns Hopkins Hospital
(410) 955-6132
www.hopkinsmedicine.org
 
Nemours AI DuPont Children’s Hospital    
(302) 651-5500
www.nemours.org

Kaiser Permanente-MAS
 
Capitol Hill Medical Center 
700 2nd Street NE 
Washington, DC 20002 
Pediatric Hematology-Marianna Horn, M.D. 
Pediatric Hematology-Eva Perdahl-Wallace, Md., PhD 
Adult Hematology- Bogdan Dumtiriu, M.D. 
202-346-3690