STATE ADVISORY COUNCIL ON HEREDITARY AND CONGENITAL DISORDERS

  

ADVISORY COUNCIL TO THE MARYLAND EARLY HEARING DETECTION AND INTERVENTION PROGRAM

Upcoming VIRTUAL Meeting Date: Thursday, April 21, 2022
​ 
​The mission of the Advisory Council to the Maryland Early Hearing Detection and Intervention Program is to provide information, to consult with, and advise the Maryland Department of Health (MDH) to ensure that all newborns receive appropriate, high quality early hearing detection and intervention (EHDI) services. Originally established in 1985 (Chapter 402, Acts of 1985), the Council currently operates in accordance with the Annotated Code of Maryland, Health General Article § 13-603.
 
The Council has established a strong, positive relationship with the Office for Genetics and People with Special Health Care Needs (OGPSHCN)/MDH and helps to encourage parent and family involvement in the program.

2022 Meetings:

Thursday, January 20, 2022 Time: 12:30-2:30 pm

Thursday, April 21, 2022 Time: 12:30-2:30 pm

Thursday, July 21, 2022 Time: 12:30-2:30 pm

Thursday, October 20, 2022 Time: 12:30-2:30 pm

 For additional information, you may contact Stacy Taylor at stacy.taylor@maryland.gov​

​​MD EHDI ADVISORY COUNCIL MINUTES  ​ ​ ​

01/20/2022​
​​​​10/21/2021​ ​ 10/15/2020​​
  ​

10/17/2019

10/18/2018

07/15/2021

07/16/2020

07/18/2019

07/19/2018

04/15/2021

05/28/2020

04/18/2019​​

04/19/2018

01/21/2021

​01/16/2020

​​01/17/2019

01/18/2018​​

  


 

STATE ADVISORY COUNCIL ON HEREDITARY AND CONGENITAL DISORDERS  

Secondary to the ​current situation with the COVID-19 outbreak the meeting of the Advisory Council on Hereditary and Congenital Disorders will be conducted virtually.  Please see below for meeting information.  The video portion of this meeting can be accessed either through a computer or tablet with video capability or a smart phone.​​​ 

Meeting Date: Tuesday, June​ 14​, 2022

​  5:30 – 7​​​:00pm 


  
The State Advisory Council on Hereditary and Congenital Disorders provides advice to the Maryland Department of Health on the policies and procedures regarding the detection and management of these disorders. This body was previously called the Commission on Hereditary Disorders and it was created by Maryland Statute § 13-101 to 13-110. The Council has legislative, medical, and consumer members, which are appointed by the Governor.   The Council considers the incidence of each disease, the effectiveness of treatment, the cost of treatment, public opinion, the opinions of affected individuals and of psychological, ethical, social and economic "experts" in drafting regulations for genetics programs, such as the newborn screening program.   Examples of issues discussed by the council include adding new conditions to the newborn screening panel in Maryland, and the implementation of Health Care Reform with respect to individuals with hereditary or congenital disorders.  The statute establishing the Council requires all genetics programs to be voluntary, to obtain informed consent, to make test results available to the patients and their health care providers, to respect confidentiality, to provide non-directive genetic counseling and to utilize accurate testing procedures and licensed laboratories.
  
 
 
 

Statewide Steering Committee on Services for Adults with Sickle Cell Disease

 
The Statewide Steering Committee on Services for Adults with Sickle Cell Disease is a group of sickle cell patients, health care providers, medical insurers, and community representatives, appointed by the MDH Secretary. The Committee is charged with educating Marylanders about SCD and identifying resources and services that could be used to improve the lives of affected residents.
  
Use the following link to access committee information;

http://msa.maryland.gov/msa/mdmanual/26excom/html/32sickle.html

 

Click here for more information on Committee Meetings

 

 
Office For Genetics And People With Special Health Care Needs
201 West Preston Street - Baltimore, MD 21201
Tel (410) 767-6730   Fax (410) 333-5047
updated 11/30/2020