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Maryland Department of Health
Office of Children and Youth with Specific Health Care Needs
Office of Children and Youth with Specific Health Care Needs
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OCYSHCN Home
211 Maryland
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I’m looking for information on:
Advisory Groups
Birth Defects
Care Coordination
Children’s Medical Services
Health Care Transition
Newborn Screening
Medical Home
Rare Diseases
Resources for Children and Youth with Specific Health Care Needs
Sickle Cell Trait and Sickle Cell Disease
Getting Involved
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Sickle Cell Disease Resources and Links
Services and Benefits
Disability Benefits/Social Services Resources
http://mdod.maryland.gov/Disability%20Benefits.aspx
Health Insurance
http://www.marylandhealthconnection.gov/
Community and Resource Organizations
Sickle Cell Disease Association of America
www.sicklecelldisease.org
National Coordinating Center and Evaluation Center for Sickle Cell Disease Newborn Screening Program
www.sicklecelldisease.net
Sickle Cell Association of the National Capital Area
www.scancainc.org
Sickle Cell Information Center
www.scinfo.org
American Sickle Cell Anemia Association
www.ascaa.org
Maryland Sickle Cell Disease Association
www.marylandsicklecelldisease.org
National Institutes of Health
www.NIH.gov
Centers for Disease Control and Prevention
www.CDC.gov
American Society of Hematology
www.hematology.org
March of Dimes
www.marchofdimes.com
Foundation for Women and Girls with Blood Disorders
www.fwgbd.org
National Collegiate Athletic Association
www.ncaa.org
Child/Teen Oriented Resources
Kids Health
www.kidshealth.org
Student Services
Maryland Infants and Toddlers Program
https://marylandpublicschools.org/programs/Pages/Special-Education/MITP/index.aspx
Student Support Services- primary/ secondary schools
https://marylandpublicschools.org/about/Pages/DSFSS/SSSP/index.aspx
Student Support Services – College/University
* The following is a partial list of local colleges’ and universities. Please check with your individual schools for support services available to students with disabilities and special circumstances.
Howard County Community College
http://www.howardcc.edu/students/academic_support_services/student_support_services/index.html
Community College of Baltimore County
http://ccbcmd.edu/supportservices/index.html
Baltimore City Community College
http://www.bccc.edu/studentservices
Montgomery College
https://www.mc3.edu/choosing-montco/resources-for-students/student-success-center
Prince Georges Community College
https://www.pgcc.edu/student-life-support-services/support-services/
University of Baltimore
http://www.ubalt.edu/academics/academic-support/
University of Maryland
https://studentaffairs.umd.edu/health-wellness
Johns Hopkins University
http://web.jhu.edu/disabilities/index.html
Medical Resources and Hematology Centers
Clinical Trials (Sickle Cell research)
www.clinicaltraials.gov
Sinai Hospital
(410) 601-5864
www.lifebridgehealth.org/sinai
University of MD
(410) 328-2808
www.umm.edu
Georgetown University
(202) 444-7599
www.georgetownuniversityhospital.org
Children’s National Medical Center
(202) 476-2800
Hematology (202) 476-7060
www.childrensnational.org
Howard University
(202) 865-4583
www.Huhealthcare.com
Johns Hopkins Hospital
(410) 955-6132
www.hopkinsmedicine.org
Nemours AI DuPont Children’s Hospital
(302) 651-5500
www.nemours.org
Kaiser Permanente-MAS
Capitol Hill Medical Center
700 2nd Street NE
Washington, DC 20002
Pediatric Hematology-Marianna Horn, M.D.
Pediatric Hematology-Eva Perdahl-Wallace, Md., PhD
Adult Hematology- Bogdan Dumtiriu, M.D.
202-346-3690
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