State Advisory Council on Hereditary and Congenital Disorders

​The State Advisory Council on Hereditary and Congenital Disorders advises the Maryland Department of Health on finding and caring for conditions present at birth and/or passed down from parent to child.

This Council was created by Maryland law  (Maryland Code, Health-General §§ 13-101 to 13-111).

Members of the Council are chosen by the Secretary of Health. These members include health care providers, lawmakers, and community members.

Maryland screens for over 50 different conditions. Among other things, the Council advises the  Maryland Department of Health (MDH) on finding and caring for conditions present at birth and/or those passed down from parent to child. 

The council is tasked with:

  • Assisting with the implementa​tion of new conditions to the Maryland newborn screening panel

  • Gathering and distributing information to educate the public on hereditary and congenital disorders

  • Evaluating the efficacy of State hereditary and congenital disorders programs

  • Advocating for those with hereditary and congenital disorders and any relevant stakeholders​


Upcoming Meeting

Meeting Date: Tuesday, March 25, 2025

  5:3​​0 – 7:00 pm

Age​​​nda​​​

Meeting link: https://us06web.zoom.us/j/86559355672?pwd=2mt0aAUGV2v0Ck694JGWQ5gnFpQaKo.1

Meeting ID: 865 5935 5672

Passcode: a94nVu​




 

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​Hereditary and Congenital Disorders Advisory Council Minutes ​ ​ ​

 12/10/2024
​04/02/2024
2023 Minutes 2018 Minutes


10/22/2024  02/21/2024
2022 Minutes2017 Minutes
09/10/2024​ 02/13/2024
2021 Minutes2016 Minutes
​08/20/2024
01/31/2024 2020 Minutes2015 Minutes

06/11/2024 
01/09/20242019 Minutes